Movement Behaviours and Wellbeing in People with Rheumatoid Arthritis
Thank you very much for all your responses to our survey looking at wellbeing in people with Rheumatoid Arthritis (RA) during the COVID-19 pandemic.
We are inviting you now to participate in this survey again, this will help us to understand how you are getting on throughout the pandemic, and to find out more about the impact of COVID-19 on the wellbeing and behaviours in people with RA.
If you did not get a chance to complete the survey the first time, please feel free to complete it now for the first time. We are really grateful for any responses. We are looking for people with RA who are over the age of 18 years to participate in this study. We are asking you to complete a survey online to see how your physical (e.g., pain and fatigue) and psychological (e.g., wellbeing and motivation) wellbeing is related to movement behaviours, such as physical activity and sitting time, during the pandemic. Participating in this study will help us to find out more about the impact of COVID-19 on the wellbeing and behaviours in people with RA. A brief summary presenting the results and findings will be available on the NRAS website at the end of the study.
If you are interested in participating in this study, please go to the following page to complete the survey. The first questionnaire to complete is a Consent Form. This is to show that you have understood what is involved and that you have read this Information Sheet. Once you have completed the consent form, you will be directed to the full survey. We would like to emphasise that after signing the consent form you may still withdraw at any time up 2 weeks after the survey has been completed without having to give us an explanation.
Thank you very much for your interest in this study.
If you require further information, please feel free to contact the research team and ask any questions you wish.
Sophia Brady Dr Sally Fenton
Doctoral Researcher Lecturer in Lifestyle Behaviour Change
E-mail: sxb1075@student.bham.ac.uk Email: s.a.m.fenton@bham.ac.uk
Dr Jet Veldhuijzen van Zanten
Senior Lecturer in Biological Psychology
Email: J.J.VeldhuijzenvanZant@bham.ac.uk
School of Sport, Exercise and Rehabilitation Sciences, University of Birmingham
Edgbaston, Birmingham, B15 2TT
Please note, your participation in this study is voluntary and you may withdraw at any time up to two weeks after you complete the questionnaire pack, without explanation or any negative consequences. If you choose to withdraw from the study, please contact the research team (contact details below) to inform us of your decision. If you choose to withdraw before the two weeks have elapsed, your data will be destroyed and not included in the data analyses. You may find certain questions within the survey uncomfortable to answer, but you do not have to answer them if you choose not to. Your responses will not be judged and will remain confidential, and you may stop completing the questionnaire at any moment should you wish. It will take approximately 45 minutes to complete the survey.
This study has been approved by the University of Birmingham ethics committee. All data will remain confidential and will be solely used for academic purposes. Consequently, we would be grateful if you were honest in your responses to the questionnaires. The data will not be anonymous but will only be identifiable using a unique ID number. This is to give you the option to withdraw your data from the study after you have completed the study. In accordance with the Data Protection Act (2018) raw and processed data from this investigation will be kept for a period of ten years following completion of the study or post-publication. Computer files containing processed data will be kept securely and will only be accessed by the study investigators. After this time period, all the data collected will be destroyed.