Understanding Fibromyalgia. 

We want to better understand the challenges and barriers people living with Fibromyalgia face when accessing health and wellbeing services, and what could improve this experience. We also extend a warm welcome to carers, family members, and other significant individuals who support someone to share their journeys too. 

What is Fibromyalgia?
Fibromyalgia has many symptoms that tend to vary from person to person. The main symptom is widespread pain.  

Fibromyalgia is a chronic condition that causes widespread musculoskeletal pain, accompanied by fatigue, sleep, memory, and mood issues. It’s often described as a long-term pain disorder that affects the way the brain and spinal cord process pain signals.  

The exact cause is unknown, it’s believed to involve a combination of genetic predisposition, infections, physical or emotional trauma, and psychological factors. 

Completing our survey
Our survey will take less than 5 minutes to complete, depending on the level of your responses.  

If you would like assistance or require a different format, please contact us via:
helpdesk@healthwatchwestsussex.co.uk or call 0300 012 0122.

Thank you so much and we look forward to hearing from you.  

The survey closes on Friday 22 May 2026.

This survey is confidential.  

• This survey has been designed to ensure that responses provided are anonymous and cannot be used to identify you. However, there are free text boxes within the survey which we ask you to complete – please ensure you do not include any information which may be used to identify you

• All questions are voluntary, and the information will be used in our reports, updates on our webpage, and through our social media. To inform interested stakeholders, partners and residents.  

Healthwatch West Sussex is committed to protecting and respecting your privacy and security. Any information that you give will be held in accordance with the General Data Protection Regulation (GDPR) and the Data Protection Act 2018.  

Our Privacy statement sets out the data processing practices carried out by Healthwatch West Sussex. We retain and use personal data (information that relates to and identifies living people) to help us carry out our role as the local independent champion for people who use health and social care services. For more information on how we use your information please see our Privacy Policy.