Inherited MND and genetic testing

1. We welcome your views on our booklet, Inherited MND and genetic testing

Our booklet, Inherited MND and genetic testing provides an overview about the inherited form of motor neurone disease (MND), and how genetic counselling and genetic testing work.

We'd really like to know what you think works well and what could improve. Please respond to all the following questions if you can.

Your comments may be used as anonymous quotes to support our work, or raise awareness through campaigning or fundraising bids. This can really help to improve understanding and make a difference for all those affected by the condition.

If you need support or wish to contact us at the MND Association, email MND Connect on: mndconnect@mndassociation.org or call 0808 802 6262

Thank you for your help.

1. Which of the following best describes you?

I'm living with MND
I'm close to someone with MND
I'm a carer for someone with MND
I'm a health or social care professional supporting people with MND
Other (please specify):

2. Please select from the following options for each question:

	Easy and clear	Quite easy	A bit difficult	Very difficult	I'm not sure
Is the content clear and easy to read?	Is the content clear and easy to read? Easy and clear	Is the content clear and easy to read? Quite easy	Is the content clear and easy to read? A bit difficult	Is the content clear and easy to read? Very difficult	Is the content clear and easy to read? I'm not sure
Is it easy to find your way around the content?	Is it easy to find your way around the content? Easy and clear	Is it easy to find your way around the content? Quite easy	Is it easy to find your way around the content? A bit difficult	Is it easy to find your way around the content? Very difficult	Is it easy to find your way around the content? I'm not sure
Is the item easy to physically handle?	Is the item easy to physically handle? Easy and clear	Is the item easy to physically handle? Quite easy	Is the item easy to physically handle? A bit difficult	Is the item easy to physically handle? Very difficult	Is the item easy to physically handle? I'm not sure

3. How useful did you find the information in this booklet?

Please add an explanation of your answer if you feel it could help us:

4. Can you give an example of how this booklet has helped you? (For example, in accessing genetic counselling)

5. Do you have any suggestions on how to improve the booklet?

Thank you for your assistance.

If you would like further guidance and support, please contact our MND Connect Helpline:
Telephone: 0808 802 6262
Email: mndconnect@mndassociation.org