Prehabilitation means getting ready for cancer treatment following a cancer diagnosis, regardless of treatment or stage of cancer, and can make a positive difference to the way in which patients respond and recover from treatment. Prehabilitation focusses on areas like nutrition (helping you to have a balanced intake of food & nutrients to keep you healthy), lifestyle, mental health, smoking & alcohol consumption.
In partnership with Macmillan Cancer Support, NHS Ayrshire & Arran would like to invite you to take part in a questionnaire about your experiences of prehabilitation (if any) and your thoughts on how prehabilitation services should be delivered in the future.
We want to hear from individuals who are 16+, and have recently undergone cancer treatment (on or after June 2022), and parents/caregivers of children under the age of 16 who have received cancer treatment within the same dates, to help shape prehabilitation services in Ayrshire & Arran.
Before you decide if you would like to take part, we need to be sure that you understand why we are carrying out this questionnaire and what it will involve for you. This participant information sheet aims to provide you with information on the Macmillan Prehabilitation Project and this questionnaire. If you have any questions, please contact Robyn Scott, Health Improvement Officer, using the details provided below.
What is the purpose of the questionnaire?
We want to hear from individuals who are 16+ and have recently undergone cancer treatment on or after June 2022, and parents/caregivers of children under the age of 16 who have received cancer treatment within the same dates, to help shape prehabilitation services in Ayrshire & Arran.
Why have I been asked to take part?
You have been asked to complete this survey as someone who has recently undergone cancer treatment as your thoughts and experience will help us inform future prehabilitation services in Ayrshire & Arran.
Do I have to take part?
No, participating in the questionnaire is voluntary and you can withdraw from the questionnaire at any time. By completing the questionnaire, you are consenting to taking part in the study. If you do start, there are no requirements to complete the questionnaire and you can withdraw at any point. Not taking part in the survey will not affect your treatment or healthcare.
What will happen if I decide to take part?
To take part, you will be asked to complete a short questionnaire. The questionnaire can be accessed via the following link (Link once the questionnaire is uploaded) and should take no more than 10 - 15 minutes to complete.
What are the potential risks of taking part?
There are no known risks for your participation in the survey.
Will my participation in the survey be confidential?
The survey is anonymous with all responses treated as confidential. Only the project team will have access to the anonymously completed questionnaires and all data will be presented and reported in an aggregated format.
What if I change my mind about taking part?
If you start the questionnaire, there are no requirements to complete the questionnaire and you can withdraw at any point.
What are we planning to do with the information provided?
The information you give us in the survey will be collected to write a report and be presented with recommendations the Macmillan Prehabilitation Project (Ayrshire & Arran) Steering Group and the Regional Advocate & SACT oversight group. No personal information will be collected.
How can I find out more information or contact you?
If you would like some more information about the questionnaire, please contact:
Robyn Scott
Health Improvement Officer
Public Health Department
Robyn.Scott@aapct.scot.nhs.uk
If you need support with your cancer journey at any time, you can contact the Macmillan Support Line on 0808 808 00 00, open 8am – 8pm 7 days a week.
Thank you for reading this Information Sheet and considering taking part in the questionnaire.
This question requires an answer
1. Are you completing this survey on behalf of someone else?
Please note: if you are answering on behalf of someone else, the following questions (Questions 2-7) should be based on the person you are completing this survey on behalf of. All other questions should be answered as a parent/caregiver supporting a child with a cancer diagnosis. *
This question requires an answer
2. What gender do you identify as? *
This question requires an answer
3. What is your age in years? *
This question requires an answer
4. What is your ethnic background? Choose one option that best describes your ethnic group or background. *
This question requires an answer
5. Which of the following best describes your employment status at the time of your diagnosis? *
This question requires an answer
6. What is the first part of your postcode? (i.e. KA1, KA12) *
This question requires an answer
7. What type of cancer are you/were you undergoing treatment for? *
This question requires an answer
8. Prehabilitation means getting ready for cancer treatment following a cancer diagnosis, regardless of treatment or stage of cancer, and can make a positive difference to the way in which patients respond and recover from treatment. Prehabilitation focusses on areas like nutrition (helping you to have a balanced intake of food & nutrients to keep you healthy), lifestyle, mental health, smoking & alcohol consumption.
Had you ever heard the term ‘prehabilitation’ before taking part in this survey? *
This question requires an answer
9. Before your cancer treatment, did you receive prehabilitation advice from your Multi-disciplinary team? (This may not have been called “prehabilitation” but would have included advice around physical activity, diet or mental wellbeing). *