What will happen to my Personal Data?
All information and samples collected during the course of the research will be kept strictly confidential. There are strict laws that safeguard your privacy at every stage. In accordance with GDPR and the Data Protection Act, your personal information will be kept confidential by assigning a unique study code to your sample and data.
We will need to use information from you, from your medical records and from your GP (with your permission) for this research project.
This information will include your name, initials, NHS number, contact details and information about your health and any medication you might be taking. People will use this information to do the research or to check your records to make sure that the research is being done properly.
People who do not need to know who you are will not be able to see your name or contact details. Your data will have a code number instead.
We will keep all information about you safe and secure.
Once we have finished the study, we will keep some of the data so we can check the results. We will write our reports in a way that no-one can work out that you took part in the study.
Cardiff University is the Data Controller and is committed to respecting and protecting your personal data in accordance with your expectations and Data Protection legislation. Further information about Data Protection, including:
- your rights
- the legal basis under which Cardiff University processes your personal data for research
- Cardiff University’s Data Protection Policy
- how to contact the Cardiff University Data Protection Officer
- how to contact the Information Commissioner’s Office
may be found at https://www.cardiff.ac.uk/public-information/policies-and-procedures/data-protection and at https://www.hra.nhs.uk/information-about-patients/
If you require printed copies of the above-mentioned documentation and privacy notice, please contact the study team using the details below.
For data that is linked with the Akrivia Health Platform, Akrivia Health and Cardiff University are joint data controllers. This means that we are jointly responsible for looking after your information and using it properly. However, only anonymised data will be shared with Akrivia Health. Akrivia Health will not have access to personal/identifying information (for example, your name, address, date of birth).
We will keep your personal data for 15 years following the end of the research project.
After 15 years, the research team will anonymise all the personal data it has collected from, or about, you in connection with this research project. Anonymised information may be published in support of the research project and/or retained indefinitely, where it is likely to have continuing value for research purposes.