Thank you so much for opening this survey. Newlife would really value your input as it works to better understand and develop its services for families caring for a disabled or seriously ill child.

The survey should take around 10–12 minutes to complete. All your answers will be treated as anonymous - your responses will be held securely by Fiveways and will not be shared with Newlife or anyone else in a way that identifies you.

There are no right or wrong answers. Your honest experience is what matters most to us.

As a thank you for your time, at the end of the survey you will be invited to enter a draw to win one of four £50 shopping vouchers.

If you are completing this on behalf of more than one child, please answer with the child you feel needs the most support day-to-day in mind.

Many thanks,

Richard Donaldson, Fiveways (an independent research organisation working on behalf of Newlife)

How we use your data

Your responses will remain anonymous. If you choose to provide personal data (e.g. your email address for the prize draw), you are consenting to its use as described below:

• Kept securely and password protected
• Used only by Fiveways for the purposes of this research for Newlife
• Not passed to any other organisation
• Permanently deleted once the research is complete (December 2026)