We are conducting a service evaluation on waiting times and ADHD diagnosis, and the effect of prolonged times on a child/young person’s future.
This questionnaire is being conducted as a service evaluation to contribute to part of my dissertation in the UCL iBSc Paediatrics and Child Health programme. My project is titled “Waiting Times for the Assessment of Children and Young People with Possible ADHD: Ethical Considerations within the CYPs Right to an Open Future.".
This study aims to understand, from your perspective as healthcare professionals, the realities of assessing and managing children and young people with possible ADHD. In particular, the referral pathways, timings, and the barriers that children and families may face when accessing diagnostic services.
Your responses will then be collated, and used to highlight the practical challenges that exist within the service, including resource allocation, service capacity, and systemic barriers etc.
The survey also asks about the perceived impact of delayed diagnosis on children’s education, mental health, and other social aspects. These insights will inform an ethical analysis on a child’s right to an open future and how a delayed diagnosis impacts their life on a wider scale.
The questionnaire should take no more than 10 minutes to complete. All responses will remain anonymous. Your expertise and experience are greatly valued and will make an important contribution to this project.
For any questions or concerns, please contact my supervisors:
Dr Sarah Aylett
Consultant Paediatric Neurologist, Lead for the Paediatric Bioethics Centre,
Great Ormond Street Hospital
sarah.aylett@gosh.nhs.uk
and
Hebe Weir
Bioethics Administration Manager and Bioethicist
Great Ormond Street Hospital
hebe.weir@gosh.nhs.uk
We really appreciate your time. Please feel free to share this with colleagues also working in this sector.