Support After Diagnosis

 

1. Please tell us about yourself:

 

2. What type of dementia were you or your family member diagnosed with?

 

3. When was the last time you had an annual dementia review?

 

4. If you have had an annual dementia review, did you feel it helped you manage the condition?

 

5. Thinking about the annual dementia review, how important are the following to you?


Extremely importantVery importantSomewhat importantNot so importantNot importantI don't know
To consider my dementia-specific needs
To consider my needs for my other conditions
To understand how my dementia is progressing
To help me understand how I can manage my dementia in case of an emergency
To understand what support is available to me
To get the right care for my support needs
To outline what care I would like at end of life
To set goals I would like to achieve in the future e.g. holidays
To discuss other health concerns I have that may not yet be diagnosed
 

6. Thinking about support after diagnosis, what, if any, services, such as health, social care or social support were you referred to?

 

7. Thinking about support after diagnosis, how important are the following to you?

Extremely importantVery importantSomewhat importantNot so importantNot importantI don't know
Information on dementia and learning about the condition
Information on financial and legal support (e.g. council tax discount or lasting power of attorney)
Support that treats me as an individual
Emotional support for me and my loved ones
Support that allows me to remain independent
Support that helps me deal with my dementia symptoms (including medication)
Peer support
Support that helps me maintain my social life
Support for people who support me (e.g. carer, family member)
Support that is consistent and ongoing
Support that helps me use my cognitive skills
Support that helps me remain physically active
Support that helps my mental health and those of my loved ones
None of the above
Other (please specify)
 

8. How confident do you feel managing your dementia?

 

9. What support do you feel you need now to help you manage your dementia that you are not currently receiving?
(Tick all that apply)

 

10. In the previous 12 months, have you or your loved one received enough support from local services and organisations, such as your local memory service, your GP or voluntary organisations, to help you manage your condition?

 

11. If you have not had enough support, what impact has this had on you?

 

12. If you find managing your dementia challenging, who do you go to for help?

 

13. The final five questions are optional, but they help us build evidence to find out whether certain groups are more affected by the annual review and post-diagnostic support:

Where are you based?
 

 

14. Please select your age category?

 

15. Please select your gender?

 

16. Which of the following best describes your ethnic group?

 

17. Which of the following terms best describes your sexual orientation?