Earlier this year, we received notification of a medication shortage affecting supply of desmopressin 10 microgram / dose nasal spray. Since then, we have heard from many members of our community about the significant impact that this shortage has had on themselves and their loved ones.
We want to better understand the impact of this shortage and are asking for people to fill out this short survey. This survey should take around 5 minutes to complete and your responses will be completely anonymous.
Please note, information you provide in this survey may be shared externally with other organisations, such as pharmaceutical companies, healthcare professionals, government organisations and other charities. This information will form part of a wider effort to address this shortage and the issues it has caused, and your responses will remain completely anonymous. By completing this survey, you are agreeing to have your responses shared with third-parties, as outline above.
Please only complete this survey if the following applies:
- You live in the UK (and so are users of the NHS) and are aged 18 or over
- Have a diagnosed condition that requires treatment with desmopressin (such as AVP deficiency, previously diabetes insipidus). Please note, you can also fill out this survey on behalf of someone else who this applies to
- Have been affected by the shortage of desmopressin 10 microgram / dose nasal spray
This survey will be open until Thursday 26th June 2025.
More information can be found at www.pituitary.org.uk. If you have any questions about this survey, please contact admin@pituitary.org.uk