Epilepsy care at the transition from children and young people’s services to adult epilepsy services
Young person (YP) transition clinics are currently provided across Lancashire and South Cumbria by Epilepsy Specialist Nurses (ESN) in Lancashire Teaching Hospitals (Preston), East Lancashire Hospitals Trust (Blackburn) and Blackpool Teaching Hospitals Trust.
These clinics are available to support young people transition from young person services (also known as paediatric services), to adult services.
We would like to understand the experiences of young people aged 14 and above, and their parents or carers about epilepsy services at the transition between children and adult services. We are interested in understanding experiences, views and expectations, hopes, and fears about this move from children to adult epilepsy services.
We have created this questionnaire so that young people, parents and carers can let us know what you think. If you would like to talk to us in more detail, we will need to have your permission (consent) for the Epilepsy Specialist Nurses (ESNs) to share your contact details. We will need you to sign a consent form for this purpose.
When we have your permission and your contact details, we will contact you.
Once the survey, interviews and focus groups have finished. We will collate the information we have received and produce a report which will include recommendations for the NHS to help improve the transition of care from paediatric to adult services. We will make this report available to those who contributed to the survey, interviews or focus groups, as well as staff.
You can contact us at any time by email, by marking your email for the attention of the Epilepsy Transition Engagement Team via the email: lscicb.communications@nhs.net