This HWLincs project is funded through the Cancer Related Health Inequalities Grant, coordinated by LVET, to support carers of people with cancer and carers who have cancer themselves.
We are creating a resource to help carers access the information and support they need.
This survey is an important part of that process. By completing it, you will help us understand:
- What information and support carers currently receive
- What information was most useful
- How information could be improved – including the content, format, timing, or how it is shared
Your responses will directly help to develop the resource, ensuring it provides clear, practical and timely guidance for carers.
The survey also offers the chance to get more involved in the project if you wish.
Your personal information is never included in our survey reports. You can read our privacy notice here.
For more information about this project, email enquiries@hwlincs.co.uk
1. Which of the following best describe your situation?
We have been working with Every-One's cancer co-production group. The members of the group identified five key areas that need to be covered in the resources created. These key areas are:
- Practical support - including financial support and help with transport and travel
- Health and wellbeing - including self care, emotional support and mental wellbeing
- Relationships and people around you - carers and loved ones and sharing your diagnosis
- Appointments and Treatment - including keeping notes
- Useful websites for carers
2. What are your thoughts on the topics listed? Do you agree with these areas? Are there any additional topics you think it would be beneficial to include?
Thinking about the content of the information...
3. What information do you wish you had been given?
- Was there any information or support you struggled to find at all or found too late?
- What information would you like to give to someone else in your situation or your past self?
- This might have been information to support yourself as a carer or for the person you care for.
4. Is there any information that should be left out?
What did people assume you needed? Was this right or wrong?
Thinking about the format of the information...
5. How would you like to receive this information and from whom? E.g. from health and care professionals verbally, a leaflet of where to get support?
Thinking about the timing, when you would receive this information...
6. When would it be most beneficial to receive this information?
7. Would you like to be involved in this work further? This might include taking part in an interview or focus group to help shape the resources, reviewing the created resources or future projects.