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Thank you for taking the time to consider completing our Pancreatic Enzyme Replacement Therapy (PERT) surveyThe aim of this survey is to help us better understand the real-world impact recent shortages in PERT supply has had on our community. Although we are working with fellow charities, the Medicines Management Team and the Department of Health on this issue - we are keen to capture the real effect this is having on people's everyday lives. The anonymised information we may collect through this survey is so important . . .it can help in influencing policy and decision-making- as we have seen in other areas e.g. NICE approvals - and can help ensure solutions are appropriately proactive and patient-focused.Your answers are anonymised - please feel free to be honest and frank in your replies - constructive criticism and suggestions for potential workable solutions - is welcomed.We truly appreciate your time and participation in completing this surveyPancreatic Enzyme Replacement Therapy is an essential treatment for Pancreatic Enzyme Insufficiency
THANK YOUWe would like to thank you for taking the time and consideration to share your experience of PERT We will continue to work hard - and collaboratively to reach an effective and expedient solution to the supply issues.If you are experiencing any difficulties - as a result of PERT shortage - please let your specialist team and dietitian (if available) know . . .and we are here to help in whatever way we can.Our Helpline is open Tuesdays - Thursdays : 10am - 4pm (if you get the ansafone leave your name and number for a callback - we only have 1 line!)ORContact us - using the NCUK contact form - available here