NHS Lanarkshire - Living with Multiple Long Term Conditions Survey

The purpose of this survey is to learn from the lived experiences of people living with two or more long term conditions in order to help us better understand the impact that they have on your life. We are also keen to understand the impact that the COVID-19 pandemic has had on you. Your views will help us to shape health and social care services so that they are better able to meet your needs.
The survey has some options for you to provide more information.

We kindly ask that you do not identify any individual in your responses by name or through process of elimination, for example naming job title and work location.

1. Your Age Category

2. Sex (Gender)

3. How would you describe your ethnic background?

4. What part of Lanarkshire do you live in?

5. In General, would you say your health is:

6. Which of the following long-term condition(s) do you have? (Please indicate this by recording roughly how long you have had it)

	Roughly how long have you had it?
Anxiety	Anxiety Roughly how long have you had it?
Cancer	Cancer Roughly how long have you had it?
Chronic Kidney Disease	Chronic Kidney Disease Roughly how long have you had it?
Chronic Liver Disease	Chronic Liver Disease Roughly how long have you had it?
Chronic Pain	Chronic Pain Roughly how long have you had it?
COPD / Asthma	COPD / Asthma Roughly how long have you had it?
Dementia	Dementia Roughly how long have you had it?
Depression	Depression Roughly how long have you had it?
Diabetes	Diabetes Roughly how long have you had it?
Epilepsy	Epilepsy Roughly how long have you had it?
Heart Condition	Heart Condition Roughly how long have you had it?
High Blood Pressure	High Blood Pressure Roughly how long have you had it?
Long Covid-19	Long Covid-19 Roughly how long have you had it?
(Osteo)arthritis	(Osteo)arthritis Roughly how long have you had it?
Parkinson's Disease	Parkinson's Disease Roughly how long have you had it?
Stroke	Stroke Roughly how long have you had it?
Visual Impairement	Visual Impairement Roughly how long have you had it?

Please detail any other condition(s) that you have

7. The following questions are about the impact your multiple long term conditions have on your life.


I am able to carry out moderate activities such as moving a table, pushing a vacuum cleaner, bowling, or playing golf	I am able to carry out moderate activities such as moving a table, pushing a vacuum cleaner, bowling, or playing golf
I can climb several flights of stairs	I can climb several flights of stairs
I am able to get a good night’s sleep	I am able to get a good night’s sleep
I feel energetic most of the time	I feel energetic most of the time
My long term conditions have had a negative impact on my finances	My long term conditions have had a negative impact on my finances
I am in a lot of pain most of the time	I am in a lot of pain most of the time
I have a lot of support from family/carers and friends	I have a lot of support from family/carers and friends
I feel alone most of the time	I feel alone most of the time
I am able to manage my long term conditions on my own	I am able to manage my long term conditions on my own

8. What has been helpful to you for living with your long term conditions? (e.g. financial support/benefits, help from family/friends, disabled access/adaptations etc)

Please do not identify any individuals in your responses by name or through process of elimination, for example naming job title or work location.

9. What has been helpful to you for managing your long term conditions? (e.g. advice/information specific to my long-term condition(s), classes to learn about my long-term condition(s), flexibility in my job/an understanding employer etc)

Please do not identify any individuals in your responses by name or through process of elimination, for example naming job title or work location.

10. Compared to before the COVID-19 pandemic started, how would you rate your health in general now

Much better now than before the COVID-19 pandemic
Somewhat better now than before COVID-19 pandemic
About the same
Somewhat worse now than before COVID-19 pandemic
Much worse now than before COVID-19 pandemic
Prefer not to say

11. To what extent has the COVID-19 pandemic impacted on your life with multiple long term conditions?

Please do not identify any individuals in your responses by name or through process of elimination, for example naming job title or work location.

12. From your experience of the Covid-19 pandemic, what has been helpful during this period and what would you like to see more of?

Please do not identify any individuals in your responses by name or through process of elimination, for example naming job title or work location.

FURTHER INFORMATION
Would you be interested in discussing these issues more in one-to-one interviews or discussion groups?

Thank you very much for your views as they are greatly appreciated. We will collate and analyse all the different responses. We will be conducting one-to-one interviews and discussion groups to explore these issues in more detail. If you would like to be considered for these then we would be grateful if you could kindly email the principal investigator, Dr. Kalonde Kasengele, on kalonde.kasengele@nhs.scot
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