Three sessions were held between 6 and 8 October 2025. Each lasted around 90 minutes and brought together people who are infected and unregistered with a support scheme, along with individuals and representatives who support them. We also held separate sessions with registered legal representatives and IBCA’s user consultants.
We know that other people may want to give their views and/or highlight any themes that weren’t included in the summary. Please read the summary report from all community representative sessions on our website before filling in this survey. If you feel your views or experiences are not reflected in this report, you can use this survey to tell us.