Thank you for your interest in becoming a Patient Partner within the National Rare Disease Strategy Implementation Programme.
Patient Partners will work alongside rare disease advocacy organisations, clinicians, researchers, healthcare professionals, policymakers and other stakeholders to shape, inform and influence implementation of the National Rare Disease Strategy.
By submitting this form, you confirm that you have read the Information for Applicants document, which outlines the role, eligibility criteria, anticipated commitment, supports available and selection process.
Information for Applicants (PDF)
🔗 Click here to view
If you have difficulty accessing the document, please contact:
NRDOadministration@mater.ie
Closing Date: 5.00pm, Monday 28 September 2026