Prenatal Testing Discussion Group – Expression of Interest

Researchers in Oxford are developing a study that would offer genetic testing in pregnancy for developmental disorders. The research team includes medical genetics and fetal medicine doctors in Oxford, who care for families affected by rare disease.

The team wants to understand what members of Unique think about prenatal (pregnancy) testing for developmental disorders, and they are looking for people to take part in a one-hour discussion online, on November 17th at 1pm. If you take part in the discussion group, a gift card to the value of £27.50 will be offered in appreciation of your time.

If you are interested in taking part, we would be grateful if you could complete the following Expression of Interest form, by 29th October 2026. It should take no more than 2 minutes. This will help us to ensure that we have a range of people in the group.

Please note that by completing this form, you confirm that you are happy for Unique to share your details with the research team.

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Name

*

Email address

*

Are you available on November 17th at 1pm

Yes

No

What is your gender?

Female

Male

Prefer not to say

I prefer another term

Comments:

This is required

Which of the following best describes you?

Parent of a child (or adult) with a rare condition

Grandparent of a child (or adult) with a rare condition

Other family member of a child (or adult) with a rare condition

Friend of a family with a child (or adult) with a rare condition

Young adult (or adult) with a rare condition

None of the above

Where do you live?

England

Scotland

Northern Ireland

Wales

Somewhere else

How would you describe your ethnicity?

What is your age?

What is your highest level of education?

Thank you for registering your interest. We will contact you before 10th November to let you know what happens next. In the meantime, if you have any questions or comments, please contact help@rarechromo.org.

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