What do you need? - Coronavirus (Covid-19) and the Lockdown



Thank you for coming here to give us your views and tell us about your experiences.  

Before you answer the questions, we wanted to give you some more information so that you can make an informed choice about contributing.  

By clicking 'Next Page' at the bottom of this page you confirm that you have read the information here and give consent to your response being used in the ways outlined here.  

If you no longer wish to fill in the questionnaire, close the browser window or leave the page.  Your questionnaire will not be submitted until you click 'Finish Survey' at the end, so you can decide not to submit the questionnaire at any time until click the 'Finish Survey' button.

If you have questions about any of this, please contact Becky at AdvoCard - becky@advocard.org.uk, 0131 554 5307.  (Becky is working from home.  If you are ringing - if you leave your number, she will call you back.)

If you would like to be kept updated about this work or would like to join our mailing list, please also contact Becky as above.

Why are we doing this work?

We are aware that many people are facing extra challenges and difficulties just now with the coronavirus (Covid-19) outbreak, the lockdown and everything else that is going on.  

At a time like this, it is even more important than usual that the views of people in Edinburgh with mental health issues are represented and heard when services and support are being planned.

We are doing this work to hear from you about:

- how you have been affected by the situation
- what you need
- and whether or not there are accessible services in place that meet your needs.  

We also want to hear if there is anything happening now that you find helpful and would like to see continue in the future.  

What will we do with what you tell us?

We will be putting together a summary of the responses and put this up on our website - www.advocard.org.uk.  (At some point in the future we might create a website specifically for this project.) 

We will also pass your views onto service planners and providers whenever we have the opportunity.  The Scottish Government Equalities and Human Rights Committee have launched an inquiry into the impact of the Covid-19 pandemic on equalities and human rights - we will be submitting a response to this inquiry and will include your views in our response.

Everything that will be published will be anonymised - that means that nobody’s name and no personally identifiable information will be included.  (We are not asking for names, and if anyone does give a name it will be treated as confidential information and not included.)

As this is an ongoing situation, this is not your only chance to give us your views.  You will have more opportunity to contribute as the year progresses.  

All information provided will be kept securely, in accordance with AdvoCard’s Data Protection Policy, until the summary of responses is published, and then destroyed after that.
How to fill in the questionnaire

The questions are on the next page.

There are eight questions.  You don’t have to answer every question, you can just answer the questions that are relevant to you.  

At the end of the questions, we ask if you are happy for us to use direct quotes from your response, i.e. for us to quote things that you have told us.  We use direct quotes because it can be incredibly powerful to hear people’s views and thoughts in their own words.  You have the option to say no to this - please do say no if you don’t feel comfortable with direct quotes being used.

To submit your responses you will need to press the ‘Finish Survey' button at the end of the questions.  Up until that point, you can withdraw by closing the browser window or leaving the page.  

Once you have clicked ‘Finish Survey’ you won’t be able to withdraw your response or edit it, so make sure you are happy with your response before you click ‘Finish Survey’.  

Unfortunately, it’s not possible to save a copy of the questionnaire and come back to it a later time.  So you may want to consider typing your answers into a separate document and copying and pasting them into the questionnaire so that you don’t lose any of your answers if you’re not able to complete your response in one go.  (Remember, the deadline is end of day Sunday 16th August, so if you are coming back to submit your response, you will need to do it by then.)
Important things to think about before making a decision about filling in the questionnaire

- Writing about your experience can sometimes be distressing. Please consider, before making a decision about filling in the questionnaire, whether or not doing so could be distressing for you and whether or not you have the support in place to help you with that distress if needed.  We have listed places at the bottom which you can contact for extra help if need be. 

- Please be careful about not including any information that could identify you.

- In the event that information is included which we think could identify a person, we will treat that information as confidential. 

- There may be very particular circumstances where we might have to break confidentiality:

         - If somebody reveals that that they have current or immediate plans to attempt suicide

         - If there are other circumstances that indicate that there is a significant risk of harm to themselves.


         - If something is revealed which indicates a significant risk of harm to somebody else.

In any of these cases, we would only pass on the information which is absolutely necessary. This is in accordance with AdvoCard’s Confidentiality Policy.

- The online survey tool we use is SmartSurvey.  This is GDPR compliant.  For more information about how your responses are protected, please go to: https://www.smartsurvey.co.uk/security
- When you fill in the questionnaire on SmartSurvey, it does not tell us who you are.  It does however, show us your IP address.  We are not able to change the settings to avoid seeing your IP address.   The only circumstance where we would try to identify somebody based on their IP address would be if we had to break somebody’s confidentiality, in the circumstances set out above. IP addresses will be deleted with the other information when it is destroyed after the report is published.  No record will be kept of your IP address.  
Places to go for support

If you find yourself in distress, now or at any other time, you might find the following organisations helpful:

Breathing Space - 

Breathing Space provide a confidential phone service for people over 16 who feel low anxious or depressed: phone 0800 83 85 87 (6pm – 2am weekdays and 24 hours at the weekend). They have expanded capacity with additional funding and staff.

Edinburgh Crisis Centre -

You can phone the Edinburgh Crisis Centre on 0808 801 0414 or email crisis@edinburghcrisiscentre.org.uk Please go to the Edinburgh Crisis Centre website for more information: http://www.edinburghcrisiscentre.org.uk/

Samaritans -

Samaritans provide a 24 hour helpline for those in emotional distress: phone 116 123,  email jo@samaritans.org or visit www.samaritans.org

NHS Mental Health Hub - 

NHS 24 have an additional service now called the Mental Health Hub. To access this call NHS 24 on 111. The recorded message will offer a number to press to access mental health support. The service is currently available 6pm to 2am but it is hoped this will expand. Staff include psychological wellbeing practitioners and registered mental health nurses, who can refer you on to further help if needed.
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