AdvoCard Community Collective Advocacy Peer Research: Physical Health Treatment and Support Questionnaire

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Please read the following information before you fill in the questionnaire.  It explains what is involved in participating in the research so that you can make an informed decision about whether or not to take part.  

If you have any questions, please contact Becky at AdvoCard – becky@advocard.org.uk, 0131 554 5307.


Why we are doing the research

People often tell us about two important issues: experiences of physical health care when you have a mental health diagnosis or lived experience of mental health issues; and side effects of psychiatric medication.

We are carrying out research to get these experiences down on paper, to identify any common issues and to gather your views about what needs to be done to improve the care people receive for their physical health issues and to address the issue of medication side effects. 

The aim of this research isn’t to make a judgment about physical health care in Edinburgh or the pros and cons of medication.  People have different views on these issues and what we want to do is represent those views.  

 
How we are carrying out the research

This is peer research - that means that people with lived experience of mental health issues have planned the research, and we have two peer researchers who both have lived experience who are working with us to carry out the research.

We will put together a report to show the results of the research. 

We then plan to hold one or more workshops to discuss the results of the research and to explore and develop ideas for improving physical health care for people with lived experience and addressing the issue of medication side effects.  


How to fill in the questionnaire

The questions are on the next page. 

By clicking 'Next Page' at the bottom of this page you confirm that you have read the information here and give consent to your response being used in the ways outlined here.  

If you no longer wish to fill in the questionnaire, close the browser window or leave the page.

To submit your responses you will need to press the ‘Finish Survey' button at the end of the questions.  Up until that point, you can withdraw by closing the browser window or leaving the page.  

Once you have clicked ‘Finish Survey’ you won’t be able to withdraw your response or edit it, so make sure you are happy with your response before you click ‘Finish Survey’.  

Unfortunately, it’s not possible to save a copy of the survey and come back to it a later time.  So you may want to consider typing your answers into a separate document and copying and pasting them into the survey so that you don’t lose any of your answers if you’re not able to complete your response in one go.
Important things to think about before making a decision about filling in the questionnaire

- Writing about your experience can be distressing. Please consider, before making a decision about filling in the questionnaire,whether or not doing so could be distressing for you and whether or not you have the support in place to help you with that distress.

- It’s not always possible to predict that you might find something distressing. If you fill in the questionnaire and find yourself in distress, we have listed places at the back of this information sheet which you can contact for help.

- In the report, we will most likely use quotes from the filled in questionnaires so be aware that you may be directly quoted in the report and be aware that we will be talking about examples from the report in the workshop and may be using quotes there too.

- Please be careful about not including any information that could identify you.

- In the event that information is included which we think could identify a person, we will treat that information as confidential. That means that we won’t tell anyone that the person contributed to the research and we won’t include any information in the report that could identify the person.

- There may be very particular circumstances where we might have to break confidentiality:

      - If somebody reveals that that they have current or immediate plans to attempt suicide

      - If there are other circumstances that indicate that there is a significant risk of harm to themselves.

      Or:

      - If something is revealed which indicates a serious risk of harm to somebody else.

In any of these cases, we would only pass on the information which is absolutely necessary. This is in accordance with AdvoCard’s Confidentiality Policy.

- The online survey tool we use is SmartSurvey.  This is GDPR compliant.  For more information about how your responses are protected, please go to: https://www.smartsurvey.co.uk/security
 
- When you fill in the questionnaire on SmartSurvey, it doesn’t tell us who you are.  We would be able to see your IP address, but that wouldn’t tell us who you are or where you live.  The only circumstance where we would try to identify somebody based on their IP address would be if we had to break somebody’s confidentiality, in the circumstances set out above. 


Places you can contact for help

If you are feeling distressed after filling in the questionnaire, you may find the support of the following organisations helpful.

All of the phone numbers are free.

The Samaritans

Available: 24 hours a day, 365 days a year

Phone: 116 123

Email: jo@samaritans.org

Breathing Space

Weekdays: Monday – Thursday, 6pm to 2am

Weekends: Friday, 6pm – Monday, 6am

Phone: 0800 83 85 87

Edinburgh Crisis Centre


Available: 24 hours a day, 365 days a year

Phone: 0808 801 0414 Text: 07974 429 075

Email: crisis@edinburghcrisiscentre.org.uk







 
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