Patient-initiated surveillance versus clinical follow-up in head and neck cancer (the PETNECK 2 study)

1. HELPING US TO DEVELOP OUR PATIENT-SUPPORT PROGRAMME

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Currently, patients with head and neck cancer attend a clinic every 2-6 months for 5 years to see how they are getting on and check if the cancer has come back (known as a recurrence). We know from previous research that it is more likely for a recurrence of the cancer to be found by a patient who notices a change in their body or in their symptoms, rather than in a routine clinic appointment with the doctor. We are planning to develop a new way to follow-up head and neck cancer patients who have a low risk of recurrence. Instead of bringing patients to hospital every few months routinely, patients would phone for an appointment when they think they need one.  
 
We need your help in developing this new system. The aim of this questionnaire is to seek your views about what we should include in the new follow-up system and how best to present it to patients. For further information about our research study, please also refer to the Patient Information Sheet. 
 
NOTE: By completing the questionnaire, you are providing agreement to participate in the questionnaire study. Please do not include any additional personal details (e.g. names or addresses) in any of the free text boxes. Thank you!


“This study is funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research Programme (project reference NIHR200861). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.”
 

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