NI Vasculitis Care Survey 2019

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Introduction

This survey was developed to complement the project ECHO scheme for Vasculitis in Northern Ireland and gives individuals living with Vasculitis a chance to express their opinion on the treatment they receive and the effect it has on living every day with this condition.  It has been designed by patients, for patients, with help from researchers, clinicians, and charities.  This project has been externally peer-reviewed and has ethical approval.

The ultimate aim of this survey is to gather evidence to improve awareness of the various vasculitis diseases, to reduce the time taken for a diagnosis, and to move towards more efficient, effective management in your local area. In order to do this we need to know about your experience of the healthcare professionals who have been involved in your care and in being diagnosed. It is hoped that increasing awareness will help to improve the care for those living with vasculitis.


This survey should take no more than 20 minutes to complete. Results from this survey will be collated anonymously and used to increase awareness around this issue, which will in turn improve the care provided for those living with vasculitis.

It is not essential to answer every question. Complete survey data is most useful to us, but we understand you may not wish to disclose (or have time to complete) some information – please feel free to skip over any such question(s).

The survey is available in other formats (large print, hard copy, verbal delivery, and different colour contrasts). Please contact raredisease@qub.ac.uk if you wish to access these, or if you have any questions you wished to be answered.

Many thanks for your participation; it is much appreciated.

 

By completing this survey, I am confirming that I understand the purpose of the study and give my consent for my responses to be used anonymously for research *