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WY Asthma patient engagement
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This survey has been written by the West Yorkshire Health and Care Partnership to better understand the impacts of poor indoor air quality on families and carers of children and young people with asthma, how we can support families and what information they would like to know. The West Yorkshire Health and Care Partnership works with NHS organisations, councils, Healthwatch, charities and the community voluntary and social enterprise sector to improve health and wellbeing. This work is part of the National Bundle of Care for Children and Young People with Asthma developed by NHS England and NHS Improvement and we really want patient experience to inform this work.
Indoor air pollution is dust, dirt or gases in the air inside buildings such as at home and inside other buildings that could be harmful to breathe in. It can be caused by a range of factors such as dust mites, cigarette smoke, damp and mould, and chemicals at home and can affect children and young people with asthma in different ways.
This survey is voluntary and by completing this survey you agree to the information you provide being shared across the West Yorkshire Health and Care Partnership to help inform our services, and may influence national services and resources.
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1.
Question 1.
Are you a parent or carer of a child under 18 with diagnosed or suspected asthma?
Required
- Required.
Yes
No
Not sure
*
2.
Question 2.
Which local authority (council) area do you live in?
Required
- Required.
Bradford
Calderdale
Craven
Kirklees
Leeds
Wakefield
3.
Question 3.
Which of the following best describes who owns your property?
I/my family own it (with or without a mortgage)
I/my family rent it privately
I/my family rent it through the local authority or housing association
Other (please specify):
This is required
Input box for - Other (please specify):
4.
Question 4.
How would you describe the severity of your child's asthma?
Mild
Moderate
Severe
5.
Question 5.
Has your child ever been admitted to hospital due to their asthma for at least 24 hours?
Yes
No
6.
Question 6.
Has your child ever seen a Paediatrician about their asthma or been seen in a specialist asthma clinic?
Yes
No
Not sure
7.
Question 7.
Have you noticed your child's asthma is affected by indoor air quality such as dust mites, damp, mould, chemicals, or indoor smoke, and if so in what way?
8.
Question 8.
Have you ever had conversations with a healthcare professional about dust mite as part of your child's asthma care?
Yes
No
Not sure
9.
Question 9.
Have you ever had conversations with a healthcare professional about smoke exposure in the home as part of your child's asthma care?
Yes
No
Not sure
10.
Question 10.
Have you ever had conversations with a healthcare professional about damp or mould as part of your child's asthma care?
Yes
No
Not sure
11.
Question 11.
Have you ever had conversations with a healthcare professional about aerosols, sprays and cleaning products as part of your child's asthma care?
Yes
No
Not sure
12.
Question 12.
Have you ever had conversations with a healthcare professional about indoor wood burning stoves as part of your child's asthma care?
Yes
No
Not sure
13.
Question 13.
If you were to notice damp or mould in your home, how confident would you be to know how to remove it and prevent it returning?
Extremely confident
Very confident
Somewhat confident
Not so confident
Not at all confident
14.
Question 14.
How would you describe local services to help people that are struggling to keep their home warm and dry such as grants to reduce fuel bills, home improvements to reduce energy loss, and boiler repairs?
I know what services exist, have accessed them in the past and they were helpful
I know what services exist, have accessed them in the past and they were not helpful
I know what services exist but have not needed to access them
I know what services exist but am not eligible to access them
I'm not sure what services exist
15.
Question 15.
If you wanted to find out more about the impacts of indoor air quality on your child's asthma, where would you like to get that information?
Discussion with your hospital-based healthcare provider
Discussion with your general practitioner or practice nurse
Discussion with a social prescriber or community link worker
Leaflet explaining what the impacts might be
NHS website
Local authority website
Charity, voluntary or social enterprise website
Facebook
Twitter
Podcast
Radio
School
Other (please specify):
This is required
Input box for - Other (please specify):
16.
Question 16.
Are there any existing resources (e.g. leaflets, websites etc.) that you have found helpful for explaining the impacts of damp and mould on asthma
17.
Question 17.
What information about indoor air quality would be helpful to share with parents and carers of children and young people with asthma?
18.
Question 18.
How comfortable do you feel having conversations with a healthcare professional about your home environment and the air quality in your home?
Extremely comfortable
Very comfortable
Somewhat comfortable
Not so comfortable
Not at all comfortable
19.
Question 19.
What would make you feel more comfortable about having conversations about your home environment and the air quality in your home?
20.
Question 20.
Would you be interested in participating in an online focus group to discuss the impacts of the home environment and poor indoor air quality in more detail? If so please state your email address:
21.
Question 21.
Any other comments