WY Asthma patient engagement

 
This survey has been written by the West Yorkshire Health and Care Partnership to better understand the impacts of poor indoor air quality on families and carers of children and young people with asthma, how we can support families and what information they would like to know.  The West Yorkshire Health and Care Partnership works with NHS organisations, councils, Healthwatch, charities and the community voluntary and social enterprise sector to improve health and wellbeing.  This work is part of the National Bundle of Care for Children and Young People with Asthma developed by NHS England and NHS Improvement and we really want patient experience to inform this work.

Indoor air pollution is dust, dirt or gases in the air inside buildings such as at home and inside other buildings that could be harmful to breathe in.  It can be caused by a range of factors such as dust mites, cigarette smoke, damp and mould, and chemicals at home and can affect children and young people with asthma in different ways. 

This survey is voluntary and by completing this survey you agree to the information you provide being shared across the West Yorkshire Health and Care Partnership to help inform our services, and may influence national services and resources. 

1. Are you a parent or carer of a child under 18 with diagnosed or suspected asthma? *

 

2. Which local authority (council) area do you live in? *

 

3. Which of the following best describes who owns your property?

 

4. How would you describe the severity of your child's asthma?

 

5. Has your child ever been admitted to hospital due to their asthma for at least 24 hours?

 

6. Has your child ever seen a Paediatrician about their asthma or been seen in a specialist asthma clinic?

 

7. Have you noticed your child's asthma is affected by indoor air quality such as dust mites, damp, mould, chemicals, or indoor smoke, and if so in what way?

 

8. Have you ever had conversations with a healthcare professional about dust mite as part of your child's asthma care?

 

9. Have you ever had conversations with a healthcare professional about smoke exposure in the home as part of your child's asthma care?

 

10. Have you ever had conversations with a healthcare professional about damp or mould as part of your child's asthma care?

 

11. Have you ever had conversations with a healthcare professional about aerosols, sprays and cleaning products as part of your child's asthma care?

 

12. Have you ever had conversations with a healthcare professional about indoor wood burning stoves as part of your child's asthma care?

 

13. If you were to notice damp or mould in your home, how confident would you be to know how to remove it and prevent it returning?

 

14. How would you describe local services to help people that are struggling to keep their home warm and dry such as grants to reduce fuel bills, home improvements to reduce energy loss, and boiler repairs?

 

15. If you wanted to find out more about the impacts of indoor air quality on your child's asthma, where would you like to get that information?

 

16. Are there any existing resources (e.g. leaflets, websites etc.) that you have found helpful for explaining the impacts of damp and mould on asthma

 

17. What information about indoor air quality would be helpful to share with parents and carers of children and young people with asthma?

 

18. How comfortable do you feel having conversations with a healthcare professional about your home environment and the air quality in your home?

 

19. What would make you feel more comfortable about having conversations about your home environment and the air quality in your home?

 

20. Would you be interested in participating in an online focus group to discuss the impacts of the home environment and poor indoor air quality in more detail? If so please state your email address:

 

21. Any other comments