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CSF Leak Association Survey
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1.
Question 1.
Please select the option that best suits your interest in CSF leaks -
I have an ongoing or recurring CSF leak.
I have had a CSF leak, but it is now resolved.
I do not have a CSF leak, nor have I had one, but a friend or family member has.
I do not have a CSF leak, nor have I had one, but I have a professional interest in them.
I do not have a CSF leak, nor have I had one.
2.
Question 2.
Are you a member of the CSF Leak Association? If not, and you are interested in becoming a member please get in touch or visit: https://www.csfleak.info/membership/
Yes - Member, UK - Please add membership number, if known
Yes - Member, Europe - Please add membership number, if known
Yes - Member, Elsewhere, Please add membership number, if known
No - Non Member, UK
No - Non Member, Europe
No - Non member, Elsewhere
Membership Number:
This is required
3.
Question 3.
Which of the CSF Leak Association resources have you used? Tick all that apply.
Our Website
Our Leaker Life Newsletter
Our leaflets / factsheets
Our Infographics
Our Social Media Pages
Our Android App
Our Journal Search Tool
Our Doctor Search Tool
4.
Question 4.
What do you think about our website? Is there anything that you specifically like / dislike about it or any content or features that you would like to see developed or included?
5.
Question 5.
If you receive our quarterly newsletter, how would you rate it?
I don't receive it (But if you'd like to, you can sign up at www.csfleak.info/mailing-list-newsletter)
I receive it but don't rate it and don't read it
It's not great and I read very little of it
It's ok, I read the odd article
It's good and I usually read most of it
It's excellent and I read almost all of it
6.
Question 6.
What is your preference for receiving newsletters by email?
The entire newsletter in a single email
Article summaries in a single email with links to full articles hosted on our website
A combination of both e.g. some articles in an email, with other articles hosted on the website
7.
Question 7.
What would you like to see more / less of in our newsletter, and is there anything that you think we can improve on?
8.
Question 8.
If you have downloaded factsheets or other information from our website, have you shared it with any of the following people (please tick all that apply)
Neurologist
Neurosurgeon
ENT Specialist
Emergency Medicine Doctor
General Practitioner
Nurse
Physiotherapist
Family
Friends
Other (please specify):
This is required
Input box for - Other (please specify):
9.
Question 9.
Is there anything that you particularly like / dislike about our current fact sheets and leaflets? Do you have any suggestions regarding the content of any new fact sheets and leaflets?
10.
Question 10.
Which of our social media channels have you visited? (Please tick all that apply)
Website
Facebook
Twitter
YouTube
Pinterest
11.
Question 11.
Which of our online and social media channels do you visit frequently - i.e. 4 or more times per month (Please tick all that apply)
Website
Facebook
Twitter
YouTube
Pinterest
12.
Question 12.
Do you have any comments or suggestions relating to our social media channels?
13.
Question 13.
Do you access any other online CSF Leak support? (Please tick all that apply)
None
Inspire Spinal CSF Leak Community
Facebook CSF Leak Groups
Other (please specify):
This is required
Input box for - Other (please specify):
14.
Question 14.
We have developed a free Android app for mobile devices and phones which contains information about CSF leaks, a library of favourite journal articles and links to some of our online content. Have you downloaded and used our Android app?
Yes
No - Please feel free to tell us why
This is required
Input box for - No - Please feel free to tell us why
If we developed a similar app for iOS App for iphone and ipad, please tell us if you'd use it?
This is required
15.
Question 15.
Do you have any general suggestions for how the CSF Leak Association could improve upon the work that it does or any relevant areas or initiatives that we could consider exploring?