Survey for Carers of people with an Autism Spectrum Condition

1. Background

Healthwatch Wiltshire gathers feedback from local people about health and social care services. We are working with Wiltshire Service Users Network on this project.   
 
We want to find out what people with Autism Spectrum Conditions (ASC) and their carers think about health, care and support services. 
 
We do not require names and the information you provide is confidential, except that anonymised quotes may be used. We use the information to tell those who run services what could be improved or developed in the future. 

Save and Continue later - If you want to save your answers and come return to the survey, scroll to the end and click 'Save and Continue later'. You'll be asked for an email address and the link to your survey will be sent to you to complete.

 

 
 

Please click continue to confirm you understand the purpose of the survey and consent to the use of the data as described above.
*

 
Going to the doctor

Making an appointment:

1. How easy do you find it to make an appointment at the Doctors for the person you care for? (Tick the box that applies)

 

2. What would make it easier for you to make an appointment? (Tick all that apply)

 
Waiting for the appointment at the surgery

3. How easy does the person you care for find waiting to see a Doctor or Nurse? (Tick the
box that applies)


 

4. What would make waiting easier? (Tick all that apply)

 
Communication

5. How easy does the person you care for find it to explain to the Doctor or Nurse about the reason for the visit? (Tick the box that applies)

 

6. What would help them explain things to the Doctor or Nurse? (Tick all that apply)

 

7. How easy do they find it to understand what they have been told about treatment, medication or follow-on care? (Tick the box that applies)

 

8. Is there anything else that you would like to tell us about going to the Doctors or things they could do to help people with ASC and their carers?




 
Going to the Hospital

9. How easy would the person you care for find it to prepare for an appointment at the hospital? (Tick the box that applies)

 

10. What would help you to prepare and get to an appointment at the hospital? (Tick all that apply)

 

11. Is there anything else that you would like to tell us about going to the hospital or things they could do to help people with ASC and/or their carers?

 
Having an appointment by phone or video

12. Has the person you care for ever had a doctors or hospital appointment by phone or online by video? (Tick all that apply)

 
Information

13. Do you feel you have enough information about support and other services and groups available for people with ASC and their carers? (Tick the box that applies)

 

14. What information service has been most valuable?

 

15. What other information would you find useful?

 

16. Which two of these would you find / have you found the most useful way to access information about support and other services for people with ASC?

 
Support

17. Overall, do you feel that the person you care for receives the support that they need in relation to their ASC? (Tick the box that applies)

 

18. Who do they get support from? (Tick all that apply)

 

19. Do they attend any groups or clubs? (Tick the box that applies)

 

20. What support has been most useful to them?

 

21. What other support would you (as a carer/relative) find useful?

 
Getting a diagnosis
 

22. Has the person you care for had a diagnosis of an ASC?

 

23. How old was the person when they received a diagnosis?

 

24. Who referred them for a diagnosis? (Tick the box that applies)

 

25. Please rate the information you were given about what would happen next. (Tick the box that applies)

 

26. Who gave them their diagnosis? (Tick the box that applies)

 

27. Please rate the information and support the person you care for was given to understand their diagnosis. (Tick the box that applies)

 

28. Please rate the information and support you were given to help you understand their diagnosis. (Tick the box that applies)

 

29. Do you have any other feedback about health and care services for people with ASC and their carers? How they can be improved?


 
About you and the person you care for:
It’s important that we hear from a diverse group of people. We ask some questions about you so that we can identify any issues that affect different groups of people. This information is anonymous, and you do not have to answer any questions if you don’t wish to.

30. Your gender:

 

31. Your age?

 

32. Please tell us the town or village where you live?

 
About the person you care for:
This information is anonymous, you do not have to answer any questions if you don’t wish to.

33. Their gender:

 

34. Their age?

 

35. Please tell us the town or village where they live?

 

36. What is their living situation?

 

37. How would you describe their Ethnic Group?

  • White
  • Asian/Asian British
  • Mixed
  • Black/Black British
 

38. If you would like to be added to our mailing list, please provide your email or postal address.
Your details will be held securely and in compliance with data protection laws. They will only be used for the purposes of carrying out Healthwatch Wiltshire activity.  Your details will not be shared with any other organisation.  You may withdraw your consent to us holding your details at any time by emailing info@healthwathchwiltshire.co.uk or calling 01225 434218.